There is a light at the end of the tunnel! Finally!

We still don't have an exact date yet, but we are well on our way to getting our little man out of the hospital. He had a bumpy night last night and it looks like everything just moved a little to quick for him and he was just to tired to keep up. He came off of the vapo therm and started taking bottle feeds very quickly and it just wore him out. He is having a really good day today though. He isn't getting any food by bottle, but he is still producing plenty of gas out of both ends. They are going to do a swallow study by the end of this week and hopefully we'll have a new plan of action before the weekend.

Now he's just showing off.

The day Bryton was born, was nothing short of terrifying. We didn't have a clue what we were facing. All we knew was that we had to do everything we possibly could to love our son and get him through whatever came our way. And look at him now! We still have good days and not-so-good days, but lately he is just showing off with how awesome and handsome he is! He has been off of the vapo-therm for a few days now and he is doing great on regular nasal cannula. For the last couple of weeks they have been working on his bottle feeding and today they wanted to start bolus feeds- instead of being fed continuously or on for a couple hours and off for a couple hours they were going to start just giving him 3-4 oz every 4 hours and he has actually taken both of his last 2 feeds entirely by bottle so if he keeps this up and keeps making progress there is every chance that they'll be able to take out the feeding tube soon!!! It's hard to try and not get ahead of ourselves but we can't help but be hopeful and start looking forward to having our baby home with us! They haven't given us an actual date yet, but we are really hoping to have him home before Thanksgiving. We wont be able to back up to New York for quite a while, even after he's released from the hospital, but all that matters is having him with us. They say home is where the heart is- then home is going to be right here for a while. And that's just fine with us. So many people take for granted, and even can't stand some of the things that we can't wait for. We are so ready to wake up in the middle of the night to change a dirty diaper! Go Bryton!

patiently....waiting for bryton to come home!!!

Bryton is doing so well!! His breathing is greatly improved his vapo-therm settings are low and his feedings are going great the bottle feeds are going good too and will continue and his weight is almost 10lbs!!! Me and mom are amazed everyday we look at our son he is a true miracle of the world!!! The doctors are ready to move him back to christiana where he was born but we don't really agree with that decision so we will be talking with the hospital about our concern but none the less bryton king has been amazingly strong since day one and he is going to be just fine me and mama rocky are just patiently....waiting for bryton to come home!!!!!!--much love--check out the new video!!!!!! bye...

9 lbs 2 oz!

Bryton is doing pretty awesome. He is down on his oxygen flow, but they came up a little on the % to just help him out a little while they continue to bring down the flow. He has been doing really well with taking his bottles, but he does tend to get a little ahead of himself and he needs some pacing. They've pulled his feeding tube from ND to NG so now it all just goes right into his stomach and so far so good- he is still pooping good and his belly hasn't changed at all. So for now all is well land we're really happy with the way things are going.

Sorry- Mommy has been very busy!

I am sorry I haven't been able to post this week- for those of you that don't know, I am visiting my family back home in California until Thursday. It is a bittersweet week because while I am happy to see my friends and family, unfortunately the reason for my visit is so that I can spend time with my amazing Grandmother who has been struggeling medically since she had a stroke in Janurary. It has been a very long, rough road for her, but she is looking great and it is just to awesome to see her. It is a hard thing though, to go from being in the hospital with our son, just to visit another hospital. They are both strong fighters though and I am so proud of both of them. My grandma is still sassin me and giving me a hard time so I take that as a good sign. Bryton is having a really awesome week. He is doing really well on the vapo therm, however they have had to increase his oxygen from 25% to 35%. Other than that the only thing they have changed with him is an increase in his feeds- 24 mls an hour. Daddy is telling me that he is starting to smile and is working on a giggle and I am dieing to get back home and see him! I have to say it's so wonderful to be back here and to see first hand our CA support group. I have gone in to places and seen people that I haven't seen in years and everyone is just loving and praying for our little boy- it is really amazing. It means so much to have so many people that care enough to take time out of their lives to see what's going on in ours. It has not been an easy journey but having love like this makes all the difference. I'll put up pictures later tonight. Go Mama and Bryton!