Making arrangements . . .

What a wild 7 months! We aren't exactly enjoying the new unit, but it's not about us, right? It's a good thing that he no longer requires intensive care- but we still miss the NICU. Bryton is doing really great right now. They tried to wean his vapo therm settings the other day, but we think they jumped the gun and he just wasn't ready for that kind of change. Daddy and I have finally decided that we definitely want to go back to NYC. We are looking for a place right now, and we are hoping to get a place and start moving our stuff asap because it would work our wonderfully if we could just transfer Bryton to another hospital as opposed to waiting for him to be discharged down here and then take him up there. This way we will have a chance to be moved in and settled before we bring him home, not to mention it will make the process of establishing outpatient/follow up care much easier. So for now all is well. NYC- here we come.

So long NICU!!!

The day before yesterday dad and I both got phone calls from the hospital letting us know that Bryton is no longer in need of intensive care and was moved to a therapy floor!!! He is only being followed by pulmonology at this point and is doing so well that he could be home within a matter of weeks!!! We are so amazed and so happy with the way things going right now, it's almost hard to swallow! Unfortunately we have been having a rough time with finding housing in the area so if anyone knows or hears of anything please let us know!! We just can't justify spending $400-$500 on one room when for just a little more we could get an apartment- which we really don't want to do. As soon as Bryton is ready, we are ready to go back to NYC. This is however our safe place right now and until we're all a little more comfortable being home together, we don't want to go anywhere. He is such an amazing little boy and we can't wait to get him home! We don't have the luxury of having our own room anymore, but it's one step closer to coming home and we wont be there long anyway! YAY!!!!

Bryton Rocks

Life has been very busy here in DE- we can't stop playing with Bryton! He came off the ventilator 3 days ago and it has been such a wonderful time for all of us. They are weaning him off of all the sedation and he is finally able to be a baby! We were very hesitant and did a lot of thinking about and discussing the issue, but we are so glad that we chose to give him steroids to help with the swelling in his air way. We knew he was ready to come off the vent, but it is a miracle that he is doing so well. He is finally laughing and smiling and interacting with us the way we've been waiting for. We know that he is going to be a little behind developmentally, but really, who cares? We are going to get him all of the help we possibly can. He is happy and growing and not limited by that damn ventilator anymore!!! It's been a really awesome, special time for us. Now we just want to get him home.