Not what we were hoping for.

At our appointment with the G.I. specialist we were told that if we really had our hearts set on it, they would remove feeding tube, how ever it was suggested that we leave it in for another 8 weeks, through the end of RSV season. God forbid if Bryton were to get sick, that feeding tube is a secure way for us to get him meds and food. So we are going to wait. We already have an appointment to go back to have it removed. We've waited this long already, what's another 8 weeks? We are so excited about his birthday next week- how amazing is it to finally be here? A little less than a year ago, we were living a nightmare. Next Friday, we will be celebrating our little miracle man. We just hope that everyone knows how much we have really appreciated all of the love and support. It has been such an incredible journey. We are so excited to have my mom and JoJo here. It's going to be such a great week. We will be posting plenty of pictures!!!