Saturday, April 25, 2009

We love good days.

Sorry there were no posts or pictures yesterday. It was a long busy day for all of us. They were able to get a new PICC line in yesterday, so we don't have to worry about a CVL. The results from the last head ultrasound came in and the Dr.'s here said it doesn't look like much has changed, but we will be getting an official report from the radiologist on monday. He went up another 10 grams, so we are at 630 grams, and they started feeding him again yesterday, so everything looks good. He has been very stable and he's just doing his thing for right now. We are here with him, but we haven't spoken to his nurse yet, so if we find out anything new when she comes in, I'll be back on to let you know asap.

1 comment:

cjfry said...

Hi to both of you - I am following your reports and just got a chance to see this posts as we left at 1:30 am to drive thru the night to Detroit, MI - arrived @ our hotel about 4:30 pm. We are here for a surprise 50th wedding anniv. for Gale's brother and wife. Out here in Michigan, we have 21 relatives so it will be nice to connect with them on this special occasion.

Anyway - glad the Bryton was able to receive a new PICC line. I am sure, for now, you are relieved that he didn't need surgery. I just want to encourage you both to "keep on keeping on". I am sure that you both get very tired with "you little Angel's busy day - you are there for him. Jeremy, hope you are feeling better today. I want you to sing a little song to your sweet little Angel. It really doesn't matter the words - just let him hear you singing - and I would not worry about what the nurses think - I am sure they have been around lots of parents so nothing will surprise them. Try to remember way back the songs you sang when little - how about "you are my sunshine, my little sunshine - you make me happy when skys are grey. You never know dear - how much we love you, please don't take - my sunshine away". I have sang that to Lily so many times that now when I sign to her this song, she claps her hands. Also, remember "Jesus loves you, this I know - for the Bible tells me so. Little ones to him belong, they are weak but He is strong. Yes, Jesus loves you, Yes, Jesus loves you, Yes, Jesus loves you, The Bible tells me so" You will be joy to your little Angel's precious spirit.

Well, just a couple of songs to help you out. I will be out in Michigan for about 1 1/2 wks. but I will check from time to time to see your posts.
Love to the 3 of you - Aunt Connie